Financial Assistance For Patients With Rare Diseases | NORD
NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already …
List of Rare Diseases | A-Z Database | NORD
What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease …
About Us - National Organization for Rare Disorders
NORD was the first national nonprofit to represent all individuals and families affected by rare disease. Today we’re the only organization working at the intersection of care, research, …
Sotos Syndrome - Symptoms, Causes, Treatment | NORD
May 19, 2025 · Learn about Sotos Syndrome, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find resources and
Rare Disease Research Grant Program | NORD
Request for Proposals NORD’s Rare Disease Research Grants Program provides seed-money grants to qualified investigators for scientific and/or clinical research. The hope is that these …
Patient Assistance Programs - National Organization for Rare …
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, …
Patient Organizations - National Organization for Rare Disorders
Representatives of patient organizations who are interested in listing an organization in the NORD’s Organizational Database (ODB) may contact NORD.
Rare Disease News - National Organization for Rare Disorders
Aug 21, 2025 · The National Organization for Rare Disorders (NORD®), the leading national nonprofit serving more than 30 million Americans with rare diseases, announced five new …
Rare Disease Advisory Councils - National Organization for Rare …
NORD supports the establishment of well-organized, high-functioning Rare Disease Advisory Councils in every state. A Rare Disease Advisory Council (RDAC) acts as an advisory body …
Pontocerebellar Hypoplasia - Symptoms, Causes, Treatment | NORD
Jul 18, 2025 · Learn about Pontocerebellar Hypoplasia, including symptoms, causes, and treatments. If you or a loved one is affected by this condition, visit NORD to find